10 Helpful Tips When Parenting a Child with Lyme Disease

Julsey Capon, MS, LCPC, NBCC

We recognize how difficult can be while parenting a child with Lyme Disease. The aim of these 10 tips is to create a secure and wholesome environment, in addition to relationships among mom and dad and children making an exciting manner of living.

1. Avoid Toxic Positivity

Avoid saying things like, “you will be better soon! Just stay positive!”

Instead, say, “We can’t predict the future, let’s try and take it day by day.”

2. Allow Honesty

It’s important they feel comfortable telling you they don’t feel well without fear of “punishment” (not being allowed to see friends)

3. Bad Memory

They may forget to take their meds or do a household chore. Memory issues are real with Lyme and they don’t need to be criticized for it.

4. Lyme Rage

During an outburst, walk away or sit with them until it passes. Trying to argue back in the midst of an episode will get you nowhere.

5. Over Stimulation

It’s common to want to avoid over stimulating environments (crowded places, restaurants, big gathering). If they don’t want to go, don’t push too hard.

6. Consult With Them

It’s hard not having control over their own medical decisions. Get their input and include them in some decision making.

7. Cut Them Some Slack

It’s hard to keep up when you’re chronically sick. If they miss a school assignment, or don’t get a good grade, it’s ok. Health comes first.

8. Unhealthy Sleep Patterns

It’s common to “vampire”, (staying up all night-sleeping during the day). They are not doing this on purpose, and they usually hate it.

9. Food Sensitivities

They are not just being picky eaters. Try and accommodate their food needs without making a big deal about it.

10. Extended Family

Prepare people ahead of time so they avoid saying things like “you look great, you must be feeling better”, and let them know about your child’s physical and emotional limitations.

Lyme Disease shouldn’t define or change any type of relationship, but it should improve and make stronger connections as well as being understanding and be aware of the situation.

*This content has been created by Julsey Capon Roach, MS, LCPC, NBCC with the purpose of offering psychological support to the Lyme community. Find out more on https://www.caponcounseling.com/

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